The 13th of October.
Reasonable sleep. I think I woke up at about half eight? This morning I sent some emails, wrote up some blogposts and watched some tv. After lunch, Mommy went to see Grandma and I watched TOWIE while adding photos to the blogposts.
Upon her return we went upstairs to reorganise my summer/winter wardrobes which basically consisted of me sitting on the bed and instructing her on where to put things. I could not have done it alone. But now everything is tidy and that is the best way for clothes to be. I do still need to organise books and shoes though, but that’s another day.
After doing that for nearly two hours, we came back downstairs and I painted my nails and have been fairly idle! I just don’t move a lot because everything is so bloody exhausting. On 7mg of pred today, although even once I’m off them, it’ll take a good six weeks for things to start improving.
The 14th of October.
Ugh, going down to 7mg was obviously a step too far because the skin on my hands started looking spotty so we’ve gone back up to 10. Stupid gvh, it is just ruining my life. I hate it so much, and every setback makes it worse because it’s so unpredictable and I can’t control it. I’m going to go to bed feeling like hell tonight. I want to cry.
Mommy and I went into town to buy some denim-look leggings and to replace my Clinique lower lash mascara because mine has run out.
This afternoon I’ve just been upset and angry about the steroids. It’s going to take forever to get off them and it feels like the light at the end of the tunnel just keeps inching further and further away. So many months of darkness.